The Impact of CMT4 on Mobility and Daily Activities

Charcot-Marie-Tooth disease type 4 (CMT4) is a rare genetic disorder which impacts daily activity and mobility. It’s estimated that over 2.6 million people in the world have CMT4. It causes progressive muscle weakness, sensory loss and atrophy, presenting unique challenges for those who are affected by it. In this article we’ll try to understand how CMT4 impacts mobility and daily activity so you can better understand what to expect. We will also look at some strategies to manage the condition.

Impact on Mobility

Charcot-Marie-Tooth disease type 4 causes noticeable impacts on mobility. People who suffer from it may experience:

• Atrophy and muscle weakness: Overtime weakness can occur in the hands, legs and feet which can make it difficult to finish normal tasks. As the disease progresses, it can cause problems with movement and dexterity.
• Difficulty balancing and walking: Muscle weakness which is caused by CMT4 can make walking difficult. This can be seen when a person walks with an unsteady gait. This can cause issues with balance, and many people with CMT4 have an increase in the risk of falls, injuries and fractures, especially with age.
• Mobility aid use: Most people with advanced CMT4 may require mobility aids to help them in everyday life. The most common mobility aids are walkers, braces and wheelchairs which help to maintain some sort of independence.

Impact on Daily Activities

CMT4 also affects normal daily activities. Some of the areas which may be affected include:

• Personal care: Grooming, dressing and taking care of personal hygiene can be a challenge.
• Household tasks: Cooking, cleaning, and managing normal chores can become difficult. Due to a loss of strength and hand function, a person with CMT4 may need to modify the home with additional adaptive tools, or get help from caregivers.
• Employment limitations: Those with CMT4 may be limited on jobs they can get due to their reduced physical strength. Workplace accommodations may help or a change in job role may be needed.

Psychological and Emotional Impact

Living with CMT4 can cause psychological and emotional distress. Some of the common things people may feel include, but aren’t limited to:

• Anxiety
• Frustration
• Sadness
• Depression
• Anger

If you or someone you know is feeling this way it’s important to seek help from a trained psychologist for support.

Strategies for Managing Daily Life

Some of the strategies you can do to help managed CMT4 include:

• Physical therapy and exercise: Engaging in physical therapy and exercise can help to strengthen muscles, manage pain and improve mobility.
• Occupational therapy: Occupational therapists can adapt with you to help accommodate for physical limitations. This may include incorporating assistive devices and strategies to make your life easier and manageable every day.
• Support networks: Building a strong network of friends, family and other healthcare providers can make the difference when living with CMT4. They can help you through really emotional times.

Related » Vital Exercises for Those With Limited Mobility

Conclusion

Charcot-Marie-Tooth disease type 4 is a debilitating disease but it doesn’t mean you can’t have quality of life. By understanding it better and incorporating additional assistance, you can maintain a productive life.