World Haemophilia Day 2009

On the occasion of World Haemophilia Day, we list some interesting links that came up in our research.

By RAHUL Baji in AilmentsDiscuss | 15 Apr 2009

Varipus Haemophilia Organisations

International The World Federation of Hemophilia (WFH) is an international not-for-profit organization dedicated to improving the lives of people with hemophilia and related bleeding disorders. World Federation of Hemophilia

United Kingdom The Haemophilia Society is the only national and independent organisation for all people affected by bleeding disorders. The Society is led by affected people and works in close partnership with the NHS. It provides information and support for all people affected by bleeding disorders and represents their interests. The Haemophilia Society

United States The National Hemophilia Foundation is dedicated to finding better treatments and cures for bleeding and clotting disorders and to preventing the complications of these disorders through education, advocacy and research. Established in 1948, the National Hemophilia Foundation has chapters throughout the country. Its programs and initiatives are made possible through the generosity of individuals, corporations and foundations as well as through a cooperative agreement with the Centers for Disease Control and Prevention (CDC). The National Hemophilia Foundation

Australia Haemophilia Foundation Australia (HFA) represents people with haemophilia, von Willebrand disorder and other related bleeding disorders and their families. We are committed to improving treatment and care through representation and advocacy, education and the promotion of research. HFA supports a network of State and Territory Foundations in Australia. As a National Member Organisation of the World Federation of Hemophilia, HFA participates in international efforts to improve access to care and treatment for people with bleeding disorders around the world. Haemophilia Foundation Australia

India Hemophilia Federation India [HFI] was established in 1983. They are a self-help NGO run by persons with Hemophilia themselves, with help from medical fraternity. They represent India as National Member Organization at the World Federation of Hemophilia based in Canada. They also work in close collaboration with World Health Organization and NACO.

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